Sometimes in this journey with Avery I realize that I have been so focused on one thing that other things have gone unaddressed. Like, my sewing station. I am NOT even going to post a pic. It’s horrendous. Trust me.
One of the things that until four weeks into her chemo treatments, I didn’t realize is hey, she is practically blind. Actually I found out that she is legally blind. I probably should be doing something to help her with that. But how?
Another way that Children’s is AMAZING. I got in touch with one of their education specialist. She called a lady that is the rep. in our area for the Center for the Blind. She called me and asked a lot of questions, like, “is she taking brail?” “Um…..no. Should she be taking brail?”, was my confounded response. So she (Janet) is going to come visit us on Wed. And tell me all about living with low vision. And the reality is, we could do all this, the steroids, the chemo, and she could end up with no vision. We need to be prepared for that. (As if you can prepare for something like that). But there are also things that she could use help with now even with her vision as it is.
This is so uncharted territory for us. We don’t even know, what we don’t know. Kind of like when you have your first baby. You really think you know, but really, you have no idea. Yep, it feels like the blind leading the blind. Hopefully Janet can open my eyes a bit to what we can do to help her.